Living with dementia in a care home: capturing the experiences of residents

Alisoun Milne

doi:10.1108/14717791111144687

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Quality in Ageing and Older Adults

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Living with dementia in a care home: capturing the experiences of residents

Document Information:
Title:	Living with dementia in a care home: capturing the experiences of residents
Author(s):	Alisoun Milne, (Alisoun Milne is a Reader in Social Gerontology, School of Social Policy, Sociology and Social Research (SSPSSR), University of Kent at Medway, Chatham Maritime, UK and Honorary Research Fellow, Canterbury Christ Church University, Canterbury, UK)
Citation:	Alisoun Milne, (2011) "Living with dementia in a care home: capturing the experiences of residents", Quality in Ageing and Older Adults, Vol. 12 Iss: 2, pp.76 - 85
Keywords:	Best practice, Care homes, Dementia, Lived experience, Quality of life
Article type:	Research paper
DOI:	10.1108/14717791111144687 (Permanent URL)
Publisher:	Emerald Group Publishing Limited
Abstract:	Purpose – The purpose of this paper is to consider the experiences and perspectives of residents with dementia living in a care home. Design/methodology/approach – The paper reviews current sources of evidence about “the care home experience”, including material drawn from: research instruments, interviews, observational methods and phenomenological research which aims to capture the lived experiences of residents. Findings – Research that is attempting to capture the lived experiences of residents further adds to the understanding of quality of life (QoL) and quality of care. Specifically, residents prioritise non-disease-related domains of QoL, which is somewhat different than those identified by relatives, care home staff and “objective” measures. Originality/value – Not only is it evident that residents are able to describe aspects of their situation but they appear to retain a sense of self and identity. There is a distinctive need for assessment of QoL amongst residents with dementia that places their subjective view of this concept at its core.