Index
ISBN: 978-1-83909-341-8, eISBN: 978-1-83909-340-1
ISSN: 0065-2830
Publication date: 30 November 2020
This content is currently only available as a PDF
Citation
(2020), "Index", Jean, B.S., Jindal, G., Liao, Y. and Jaeger, P.T. (Ed.) Roles and Responsibilities of Libraries in Increasing Consumer Health Literacy and Reducing Health Disparities (Advances in Librarianship, Vol. 47), Emerald Publishing Limited, Leeds, pp. 297-306. https://doi.org/10.1108/S0065-283020200000047016
Publisher
:Emerald Publishing Limited
Copyright © 2021 Emerald Publishing Limited
INDEX
Academy of Health Information Professionals (AHIP)
, 204
Accessibility
, 11, 31, 112, 143, 147, 149–150, 155, 172, 191
Acquired immunodeficiency syndrome (AIDS)
, 244–245
Adolescents
, 13, 105–106, 160, 173, 294
Adult literacy
, 23
Affordable Care Act (ACA)
, 22, 123
Ageing Population model
, 189
Agreeableness
, 225
ALA-accredited LIS programs
, 86, 286–287
Alabama, regional context of
, 65–66
Alabama Health Libraries Association (ALHeLA)
, 66
Alabama Public Library Service (APLS)
, 62, 66–67
Alternative health communications
, 244–245
American Association of School Librarians (AASL)
, 167
American Civil Liberties Union (ACLU)
, 165
American Library Association (ALA)
, 10, 26, 35, 84, 114, 168, 173
American Medical Association
, 244
American Public Health Association
, 42
Appalachia, health literacy in
, 200–214
Association of College and Research Libraries (ACRL)
, 63–64, 77
Audience
, 25
Austin, Texas
, 218
Authority
, 63
Barriers to health information access
, 143–145
Best practices
, 132–133, 171, 182, 184, 208, 213, 277, 292
Big Five Inventory (BFI)
, (see Five-Factor model values)
Birmingham Public Library
, 68
Board Certified Patient Advocate
, 293–295
Cash-equivalent compensation
, 221
Centers for Disease Control and Prevention (CDC)
, 62, 84–85, 201
CHI Specialization (CHIS)
, 35
Chicago Public Library (CHIPUBLIB)
, 229
Chief Executive Officer (CEO)
, 202
Chief Medical Officer (CMO)
, 204
Cisgenderism
, 250
Code of ethics
, 148, 248
Communal asset
, 15–17
Community
, 243
archive of zines
, 243
collaborations with musicians
, 228–229
community-based health literacy interventions
, 35
efficacy
, 267–268, 270–272
empowerment
, 43
engagement
, 48
food gardens
, 43
gardens
, 43
information practices
, 16
response efficacy
, 268–270, 274
Comprehensive sexual education (CSE)
, 160–161
Computer
, 23
Comstock Act (1873)
, 244
Connections
, 62
Conservatories UK (CUK)
, 229
Consumer
, 22
health literacy
, 4, 8
information services
, 64
Consumer and patient health information service (CAPHIS)
, 14, 200–202, 212
Consumer health information (CHI)
, 25–26, 293–294
behavior
, 114
injustice
, 286, 288–293
justice
, 4–17
programs and services
, 58
Consumer health information literacy
, (see also Opioid consumer health information literacies (o-CHIL)), 104–107
implications for librarians
, 114–116
of young adults
, 104
young adults’ health information behaviors and information literacy
, 107–114
Consumer health literacy
, (see also Opioid consumer health information literacies (o-CHIL)), 22–24
future directions for NNLM support for public library services
, 35–36
group questions
, 39–40
health literacy outside clinic
, 25–26
public libraries providing disaster and emergency health information
, 30–35
relationship between health literacy and health outcomes
, 24–25
role for libraries
, 26
US Public Libraries and Health Information
, 27–30
Content analysis
, 10, 15, 94, 98, 244
website
, 62, 64, 66
Convention of Rights of Child (CRC)
, 162–163
COVID-19
, 4
health literacy amid COVID-19 pandemic
, 5–8
pandemic
, 286, 288
Credibility
, 11, 106, 111–114, 127
Critical analysis
, 124
Critical appraisal
, 106, 124, 129
skills
, 124
workshops
, 127–128
Critical information literacy
, 123–125, 167, 170, 172
Cycle of Bias framework
, 127–128
Data
analysis
, 67
mining
, 66
Denver Public Library
, 191
Digital information
, 143–144
Digital libraries
, 142
Disabilities
, 142, 145
Disadvantaged populations
, 13–15
Disasters
, 22
Disinformation
, 121
DIY health solutions
, 254, 256
Drug overdose awareness programs
, 63
Drug treatment court (DTC)
, 182
drug courts integrate alcohol and drug treatment services
, 192
family support role in
, 184–185
forging partnerships among drug courts, public agencies, and community-based organizations generates local support
, 193
health literacy role in
, 186–190
libraries roles in working with drug courts
, 190–191
participants
, 182–183
participants characteristics
, 185
participants’ health and social needs
, 185–186
performance benchmarks
, 193
providing access to continuum of alcohol, drug, and related treatment and rehabilitation services
, 192–193
standards
, 183
support team
, 184
Drug Treatment Courts (DTC s)
, 13–14
e-health
, 23
information
, 126
E-rate program
, 191
Education
First Amendment in schools
, 164–166
and information access rights
, 162
rights
, 163
rights accorded by United Nations
, 162–164
US Constitutional Law
, 164
Emotional stability
, 225
Equity
, 84
Everyday-life health information
, 110–113
Exploratory analysis
, 46
External community engagement
, 72–73
Extraversion
, 225
Facebook
, 27, 109
Family support role in DTCs
, 184–185
Federal Emergency Management Agency (FEMA)
, 30
Female-to-male (FTM)
, 252
Financial insecurity
, 227
Financial services
, 23
Financial stability
, 109
Five-Factor model values
, 255
Five-point Likert scales
, 111
Food deserts
, 97
Food gardens
, 43–44, 51–52
assessing impacts of library gardens
, 52–53
case studies
, 46
dynamic and evolving roles of public libraries
, 53
future directions
, 51
High Point Public Library
, 46–48
Kitchener Public Library
, 48–49
LBPL
, 49–51
Let’s Move in Libraries Survey
, 58–59
library as place
, 52
methods
, 44–46
Food insecurity
, 43
Food justice
, 42–43
Gay, Lesbian & Straight Education Network (GLSEN)
, 166
Google
, 67–68, 109, 113
Graduate research assistant (GRA)
, 207
Greater High Point Food Alliance
, 48
85 Green project
, 48–49
Harrison District Library
, 44
Health
, 84, 247
sciences information courses
, 93–94
Health Alliance for Austin Musicians (HAAM)
, 218, 222
Health disparities
, 4, 8, 26, 200
libraries to reduce
, 232–234
Health equity
, 26
Health inequalities
, 86
Health inequities
, 120
Health information
, 104, 127–128
as communal asset
, 15–17
injustice
, 4, 8, 17, 286, 288–293
justice
, 4–17
needs
, 9, 15, 30–31, 34, 36, 84, 93, 104, 160, 168–169, 271
seeking
, 142–143
Health information assessment
, 11–12
overcoming barriers to
, 12–13
serving disadvantaged populations
, 13–15
Health Information Center (HIC)
, 14, 200, 202–203
Health information practices of LGBTQIA+ Communities
, 281
health librarianship’s role in advocating for
, 275–277
Health insurance literacy
, 96
Health justice
framework
, 86
inclusion in LIS curricula
, 96–97
Health librarianship’s role in advocating for LGBTQIA+ health information practices
, 275–277
Health literacy
, 22–23, 26, 121–122, 187–188, 291
amid COVID-19 pandemic
, 5–8
assessment
, 208–210, 213
CAPHIS
, 201–202
fourth-year medical student health literacy rotation
, 205–206
future plans
, 212–213
goals align with drug court goals
, 188–190
Health Literacy Forum
, 203–205
Health Literacy Pilot Project
, 206–207
health literacy pilot project survey questions
, 216
Health Literacy Wisdom Summit (2017)
, 208–209
HIC
, 202–203
HLE2
, 209–210
initiative
, 207–208
libraries and librarians helping to improve consumer
, 288
miscelaneous activities
, 210–211
programming
, 125–127
public libraries support
, 190
role in DTC programs
, 186
UTMC
, 200–201, 211–212
Health Literacy Environment, Version 2 (HLE2)
, 209–210
Health Literacy Environment of Hospitals and Health Centers (HLEHHC)
, 207
Health Literacy Forum
, 203–205
Health Literacy Management Scale (HeLMS)
, 188–189
Health Literacy Task Force
, 207
Health Literacy Wisdom Summit (2017)
, 208–209
Health of Musicians
, 218–219
analysis and results
, 222–223
community collaborations with musicians
, 228–229
conducting focus groups
, 222
documenting and providing access to local musical contributions
, 231
economic factors
, 227
examples of libraries serving musicians
, 228
forming and scheduling focus groups
, 221–222
impact of gig and venue, including touring
, 224
information professional role in musicians’ experiences
, 231–232
lifestyle
, 226
literature on musicians
, 225
marketing
, 234
methods
, 219
musicians suggestions on improving health
, 224–225
musicians’ health
, 227–228
musicians’ health biographies
, 223–224
obtaining IRB approval and planning for data collection
, 219–220
participants
, 223
partnerships
, 232–233
personality traits of musicians
, 225–226
products
, 233–234
programs
, 233
public music programming
, 230
recommendations for libraries to reduce health disparities
, 232
recruiting focus group participants
, 220–221
resources for musicians
, 229–230
Healthcare Advocacy
, 293
Healthcare system literacy
, 23
Healthy communities
, 8–11
Healthy People 2020 agenda
, 84, 120, 126
Healthy scepticism
, 124
Heteronormativity
, 250
HIV/AIDS crisis
, 249
Human immunodeficiency virus (HIV)
, 186, 243
Human rights
, 160, 166
Hurricane Katrina (2005)
, 30
Illness recovery management (IMR)
, 187
IMLS HIPLGBTQ Interview Protocol
, 281
Inclusive library services
, 152
Independent Patient Advocacy
, 293
Information
, 4, 23
avoidance
, 105
behavior
, 105
creation
, 63
inequities
, 13, 160–174, 287
information-related factors
, 4
literacy
, 104
needs
, 108–110
policy and planning
, 62
professional role in musicians’ experiences
, 231–232
science
, 105
seeking
, 110–113
seeking behavior
, 104, 107, 110, 143–144, 154, 167, 226
and self-efficacy
, 269–271
sources
, 62
support services
, 62
Information access
, 160
rights
, 162–166
Instagram
, 109
Institute of Medicine (IOM)
, 23–24
Institute of Museum and Library Services (IMLS)
, 27, 292–293
Institutional Review Board (IRB)
, 219
obtaining IRB approval and planning for data collection
, 219–220
International Federation of Library Associations and Institutions (IFLA)
, 84, 148
International Overdose Awareness Day
, 71
Job uncertainty
, 227
Justice
, 84
K-12 sexual education
, 294
Kitchener Public Library
, 48–49
Lesbian, gay, bisexual, transgender, queer, intersex, and asexual communities (LGBTQIA+ communities)
, 15, 16, 92, 242, 264–265
health librarianship’s role in advocating for LGBTQIA+ health information practices
, 275–277
health of LGBTQIA+ populations
, 265–266
individuals deploy self-efficacy communally
, 271–272
queering self-efficacy frameworks for
, 274–275
LibGuide
, 71
Librarians
, 4, 42, 125
as agents of health information justice
, 286
helping to improve consumer health literacy
, 288–293
perspectives of Board Certified Patient Advocate
, 293–295
role
, 122–123
working toward health justice
, 286–288
Librarianship
, 30, 288
Libraries Transform
, 34
Library and Information Science (LIS)
, 10, 84, 89
course examples for four thematic areas
, 90–91
curricula
, 84–85
findings
, 87–89
further opportunities for health justice inclusion in
, 96–97
health sciences information courses
, 93–94
limitations and future research
, 97–98
literacy concerns
, 94–95
methods
, 86–87
multicultural and diverse populations
, 92–93
objective
, 85–86
social justice and libraries
, 96
Library information science (LIS)
, 264
curriculum
, 84–85, 91–92, 277
education
, 54, 98, 152, 155
programs
, 13
Library/libraries
, (see also Public libraries), 4, 36, 42, 105–106, 125, 166–167, 184
as agents of health information justice
, 286
helping to improve consumer health literacy
, 288–293
library gardens, assessing impacts of
, 52–53
library-based curriculum
, 276
organizing course for library students in universal design
, 150–151
perspectives of Board Certified Patient Advocate
, 293–295
physical environment
, 148–149
as place
, 52
programming
, 35, 40, 51, 53, 174, 182, 292
to reduce health disparities
, 232–234
reference services
, 149–150
role
, 26
roles in working with drug courts
, 190–191
social justice and
, 96
spaces
, 42
student reflections
, 151–153
universal design implementation in
, 147
users
, 63
working toward health justice
, 286–288
Lifestyle
, 226
impact health literacy
, 255
Literacy
, 94–95
Local Music Project
, 228
Long Beach Public Library (LBPL)
, 9, 49–51
Marketing
, 234
MAXQDA software
, 223
Media
, 23
Medical librarians
, 200, 206
Medical librarianship
, 84
Medical library
, 292
Medical Library Association (MLA)
, 27, 35, 84, 233
MedlinePlus
, 95, 107
Mental health
illness
, 65
strategies
, 108–109
Messaging services
, 6
Mini-Med School programs (MMS programs)
, 106
Misinformation
, 121
Money
, 124–125
Musicians’ health
, 227–228
National Assessment of Adult Literacy Survey
, 23
National Association of Drug Court Professionals (NA DCP)
, 183
National Health Service
, 124
National Institute on Drug Abuse
, 62
National Institute on Minority Health and Health Disparities (NIMHD)
, 26
National Library of Medicine (NLM)
, 9, 22, 30, 123, 233
National Network of Libraries of Medicine (NNLM)
, 9, 30–31, 190, 201, 212–213, 233
initiatives in public libraries
, 33–35
Neighborhood Library
, 50–51
NEO Personality Inventory Revised (NEO-PI-R)
, 225
Neuroticism, extraversion, and openness (NEO)
, 225
Normativity
, 243
Nutritional literacy
, 48–50
Oneonta Public Library
, 71
Online information
, 126
Online search systems
, 142
Openness to experience
, 225
Opioid Consumer Health Information Literacies (o-CHIL)
, (see also Consumer health information literacy), 10, 62–64, 74–76
assigned opioid-related role
, 71–72
collections
, 68–71
contextualized information literacies in specificities
, 76–78
external community engagement
, 72–73
findings
, 68
internal departments
, 72
news and upcoming/past events
, 73
public libraries and opioid crisis
, 64–65
regional context of Alabama
, 65–66
research methods
, 66–68
resources
, 71
strategic representation
, 72
Opioid crisis
, 64, 294
public libraries and
, 64–65
Opioids
, 62
Participant demographics
, 269
Partnerships
, 232–233
Patient
, 22
advocates
, 17, 286, 294–295
narrative
, 247
Patient Protection and Affordable Care Act
, 9, 26, 32
Peer-to-peer approach
, 107
People with disabilities
, 153–155
Personal narratives
, 256
Personality impact health literacy
, 255
Personality traits
, 225
of musicians
, 225–226
Physical health
, 108
#Plandemic”
, 7
Population, intervention/exposure, comparison, and outcome (PICO/PECO)
, 127
Power
, 124–125
Prescription addiction
, 65
Preston Medical Library (PML)
, 14, 200–201
Privacy
, 110, 112, 221, 242
Products
, 233–234
Professional development for librarians
, 32, 34–35, 233
Programs
, 233
Public librarians
, 132
Public libraries
, (see also Library/libraries), 6, 8–11, 26, 42–43, 120–121, 125, 142, 182, 973
dynamic and evolving roles of
, 53
gardens
, 43
and health insurance information provision
, 31–33
NNLM
, 30–31, 33–35
NNLM initiatives in
, 33–35
and opioid crisis
, 64–65
providing disaster and emergency health information
, 30
support health literacy
, 190
Public Libraries Act
, 142
Public Library Association (PLA)
, 27, 33, 190
Public music programming
, 230
Qualitative thematic analysis
, 87
Queer theory
, 243
Queer Zine Archive Project (QZAP)
, 15, 243–244, 287
(Im)patient narratives
, 247
engaging collection
, 248
exclusion/misrepresentation of Queer and trans experiences
, 253–254
findings
, 248
health concerns
, 248–250
historical foundations of alternative health communications
, 244–245
ignorance/bigotry of medical professionals
, 254
issues affecting access to care
, 250–252
personal narratives
, 256
providing DIY health solutions
, 256
providing medical information
, 255–256
queer and trans health-related zines from QZAP collection
, 259–261
social stigma
, 252–253
solutions
, 254
zines and
, 245–247
Queering self-efficacy frameworks for LGBTQIA+ communities
, 274–275
Queerness
, 243
Queersafe Zine, A
, 243, 255
Rand Corporation
, 44
Random online commentators
, 5
Reading Connect
, 73
Reconceptualizing theories of self-efficacy
, 265
Reference services
, 149
Rehabilitation
, 183, 187
Rehabilitation Act (1973)
, 147
Reproductive health care
, 249
Reproductive rights
, 244
Research methods
, 64
Resources for musicians
, 229–230
Rights-based analysis
, 170
Robert Wood Johnson Foundation (RWJF)
, 44
Rockford Public Library (RPL)
, 75
Scientific literacies
, 23
Seed Library
, 44
Self-efficacy
, 264, 266–267, 272–274
findings
, 269
health librarianship’s role in advocating for LGBTQIA+ health information practices
, 275–277
health of LGBTQIA+ populations
, 265–266
information and self-efficacy as co-constitutive
, 269–271
LGBTQIA+ individuals deploy self-efficacy communally
, 271–272
limitations
, 277–278
methodology
, 267–269
participant demographics
, 269
queering self-efficacy frameworks for LGBTQIA+ communities
, 274–275
reconceptualizing theories of
, 265
supplemental materials
, 281
Self-esteem
, 226
Self-response efficacy
, 268, 270–271
Sentinel community
, 44, 47–48
Sexual education
, 13
better model
, 169–170
collections
, 172–173
developing youth advocates
, 172
educating parents
, 170–171
education and information access rights
, 162–166
environment
, 172
within library
, 172
negative sexual health outcomes
, 168–169
outreach
, 173–174
small-scale solutions with large impact
, 170
state of American sex education
, 160–162
third place for
, 166–168
Sexual health literacy (SHL)
, 160–161, 174
Sexual Risk Avoidance programs
, 160
Sexuality Information and Education Council of United States (SIECUS)
, 161
Sexually transmitted diseases (STDs)
, 186
Sign language
, 144
Skilled health information consumers
critical appraisal workshops
, 127–128
critical information literacy
, 123–124
free health literacy workshops
, 132–133
health literacy
, 121–122
health literacy programming
, 125–127
Healthy People 2020
, 120
library survey questions
, 136–138
methods
, 128–129
results
, 130–132
role of librarians
, 122–123
role of money and power
, 124–125
Skylight
, 202
Social determinants of health (SDOH)
, 4, 26, 84–85, 89, 94, 96–97, 122–123, 186
Social justice and libraries
, 96
Social media
, 6–7, 67, 106
outlets
, 27
resources
, 109
Social networks
, 105, 190, 220
Social stigma
, 252–253
Social support
, 65, 97, 111, 184–185
Social well-being
, 109
Social workers
, 184
South Carolina (SC)
, 265
South Central Region (SCR)
, 233
SpectraCare
, 73
Strategic diversity manifesto (SDM)
, 62, 67
Strategic Plan
, 35
Students’ intellectual freedom protections
, 160
Test Positive Aware Network (TPAN)
, 245
Texas
, 218
Touring
, 224
Traditional population health reporting mechanisms
, 44
Training and Education Center (TEC)
, 34
Transgender
, 67, 242–243, 264, 266, 270, 272, 276
Trussville Public Library (TPL)
, 72
Twitter
, 27, 109
UN Convention on Rights of People with Disabilities
, 142
United Nations Educational, Scientific, and Cultural Organization (UNESCO)
, 104
Universal Declaration of Human Rights (UDHR)
, 13, 162
Universal design
, 145–147
barriers to health information access
, 143–145
disabilities in universal design
, 142
implementation in libraries
, 147–153
people with disabilities
, 153–155
University of Missouri-Kansas City (UMKC)
, 231
University of Tennessee Graduate School of Medicine (UTGSM)
, 200
University of Tennessee Health Science Center (UTHSC)
, 204, 210
University of Tennessee Medical Center (UTMC)
, 14, 200, 202, 207, 211
US Affordable Care Act
, 218
US Constitutional Law
, 164
US Department of Health and Human Services (USDHS)
, 84
US Public Libraries and Health Information
, 27–30
USDA Summer Feeding Program
, 47–48
User diversity
, 145, 150, 153–155
Virus
, 5
Waukegan library
, 33
Web Content Accessibility Guidelines (W3C)
, 145
Website content analysis
, 62, 64, 66
Well-being
, 108
information needs and seeking to support
, 108–110
White + elitist legacy (White-IST legacy)
, 64
Women in drug court system
, 186
Work-related alcohol consumption
, 227
World Health Organization (WHO)
, 4, 44, 120, 288
Young adults
findings
, 113–114
health information behaviors and information literacy
, 107
information literacy of
, 104
information needs and seeking to support well-being
, 108–110
information seeking and everyday-life health information
, 110–113
sharing health information
, 105
on social media
, 106
Youth rights
, 162
YouTube
, 110
Zine Librarians Unconference (ZLuC)
, 247
Zines
, 16, 245–247
Zinesters
, 243, 249, 253
- Prelims
- Introduction
- Chapter 1 Introduction: Libraries and Librarians as Agents of Health Information Justice
- Public Libraries/Healthy Communities
- Chapter 2 Consumer Health Literacy, the National Library of Medicine, and the Public Library: Bridging the Gaps
- Chapter 3 Growing Food at and through the Local Library: An Exploratory Study of an Emerging Role
- Chapter 4 Opioid Consumer Health Information Literacies in Alabama’s Public Libraries: An Exploratory Website Content Analysis
- Chapter 5 Applying a Health Justice Framework to Examine Health and Social Justice in LIS Course Offerings
- Health Information Assessment
- Chapter 6 Consumer Health Information Literacy and Information Behavior of Young Adults
- Chapter 7 Asking Good Questions: Developing Skilled Health Information Consumers
- Overcoming Barriers to Health Information Access
- Chapter 8 Making Health Information Accessible for All: The Impact of Universal Design in Public Libraries
- Chapter 9 Sexual Education is a Human Right: Information Inequities of K-12 Sexual Education and Librarians’ Roles in Supporting Adolescents’ Sexual Health Literacy
- Serving Disadvantaged Populations
- Chapter 10 Public Libraries Expanding Health Literacy for Drug Court Participants
- Chapter 11 Increasing Health Literacy in Rural Appalachia Tennessee through Outreach, Communication, and Education: How Libraries Can Reduce Health Disparities in their Communities
- Chapter 12 The Health of a Musician: Documenting and Addressing Health Disparities among Performing Musicians
- Health Information as a Communal Asset
- Chapter 13 (Im)patient Narratives: Peer-to-Peer Health Information Transfer in the LGBTQ+ Community via Zines from the Queer Zine Archive Project (QZAP)
- Chapter 14 “When It’s Time to Come Together, We Come Together”: Reconceptualizing Theories of Self-Efficacy for Health Information Practices within LGBTQIA+ Communities
- Conclusion
- Chapter 15 Libraries and Librarians as Agents of Health Information Justice: Concluding Thoughts
- Index